This 3-year-old in Ontario has seizures up to 100 times a day. She still can’t get a drug that’s shown to help.

Stepping into the Guitard-Lapointe family home in Val Caron, Ont., the first thing you notice are the tiny slivers of sunlight poking through the curtains, which are drawn tightly shut.

It’s July, and for most toddlers, that means days spent outside, walking barefoot through the grass or running through the sprinkler in the backyard, under the summer sun.

But for three-year-old Alina Lapointe, that isn’t possible.

“We don’t go outside at all,” said Cindy Guitard, Alina’s mother. “We try and make Alina as happy as we can, in the house, every day. And she is, she is happy. And she’s very loving and strong, and a very brave little girl. We keep it dim in every room of this house — for her.”

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This 3-year-old in Ontario has seizures up to 100 times a day. She still can’t get a drug that’s shown to help.
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